Wednesday, November 19, 2014

Heroes Among Us: Updated

Over the past few months, an amazing story, one full of superheroes and suspense, tears and joy, has been going on in this town, in our lives. It's a story that has kept me up at night, inspired me, made me cry, and changed my understanding of parenting. And as a testament to the power of our heroine, this story is about a friend I don't actually know that well, but who has brought the world into her home and welcomed us into her life and her story.

My friend is Mary. I've known her for several years, but mostly from ending up at the same parties (she throws great parties). We have children the same age but, due to conflicting schedules, rarely even got them together. Mary is a rather amazing woman in her own right, as evidenced by this wonderful post from Mary's and my shared dear friend Carrie.

In August of this year, Mary found out that one of her 20-month-old twin boys, Lachlan, had a very rare form of leukemia called JMML. The diagnosis came after months of nonstop illnesses, and it hit hard. Survival rates are not good for JMML, and little is known about this terrible childhood disease. Lachlan's identical twin brother doesn't have it, but he may develop it (can you imagine?!). The only cure for Lachlan would be a bone marrow transplant.

Mary, ever the amazing planner and socialite, faced this news with incredible energy (as did her husband and entire family -- they're all pretty awesome). Not only did Mary start spreading the word to find a donor for her sweet son, but she always, always made clear that she wanted every family to have the chance to fight by having a donor. Her very public fight to save her son was also a public cry for everyone to join the Be the Match Bone Marrow Registry.

She and her circle organized Be the Match donation collections, fundraisers and drives. She dedicated Facebook posts and every update about her son to spreading information about the Be the Match Registry.

Be the Match is amazing, and you should join. Registration is simple: you fill out a form saying that you understand the process, then they mail you four cotton swabs. You swab your cheeks and mail it back. That's it. They ask that you keep them posted when you move or change email, but otherwise...you're done. Then you have about a 1 in 570 chance of being called to donate, which is a process much less difficult than it once was. I mean, it's not every day we're handed the opportunity to do something truly altruistic, to be a real-life hero -- to save a life. Being a bone marrow donor saves a life.

Lachlan was matched with a donor in late summer, but that donor backed out after having a few initial tests done. At first I was outraged, but Mary, ever full of grace, was the one who calmed me down. She knew it wasn't meant to be, and she was optimistic for another match. Thankfully, they found another donor quickly, a man in his mid-30s who does not know the family or anything about Mary's crusade. This man, who she's not allowed to meet until after a year, and only if he chooses to, is Lachlan's hero, his family's hero, and my hero. He is doing the most selfless thing in the world to save the life of a dear two-year-old he's never met.

Tomorrow, Lachlan gets his transplant. The hospital staff calls it his second birthday, his chance to live again. He got through a week of chemo like a champ, and he continues to be an amazing fighter. It's so hard for me to watch a little boy, the same age as my youngest, confined to a hospital crib and hooked up to wires. But he smiles -- oh, his smiles -- and you know that he's fighting. He has an amazing support system, and he has a superhero about to save his life.

Lachlan still has a big fight ahead of him, but he has the chance to make that fight because of his donor hero. Please, be a hero to another family. Honor Mary, Lachlan and the countless other children and adults waiting for a transplant. Sign up with Be the Match today. And if you can't donate marrow, please donate money so that others can join. Thank you.

Find updates about Lachlan's story here: www.facebook.com/LachlanFightLikeaTiger

Update: Lachlan had his transplant on Nov. 20. Now the family is in the crucial waiting time to see if the transplant will take. The first 100 days are key, so Be the Match is organizing a 100-Day Donor Dash for Lachlan. The Dash is a celebration of this 100-day journey and a chance to pay it forward.

The dash will run Nov. 21 - March 1. The goal: recruit 1,000 new donors online and raise $25,000 for Be the Match. Here's the info to take part:

JOIN the registry: join.bethematch.org/Lachlan
DONATE at www.bethematchfoundation.org/goto/lachlansdonordash
SPREAD the word with #lachlansdonordash

Many thanks to those who have shared this post and supported this family.


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